EDUCATIONAL PROGRAMS & PUBLICATIONS
Patient Education
Navigating the NET Patient Journey: Valuable Insights and Resources for Living with Neuroendocrine Cancer
Navigating the NET Patient Journey was written in 2020 by a group of support group leaders, patients, and caregivers, who are on the NET patient journey themselves, in the hope that fellow patients and caregivers can benefit from the roads they have traveled. Includes expert opinions and resources.
High-Grade: Neuroendocrine Cancers: A Guide for Patients and Caregivers
Healing NET worked with medical experts, patients, and caregivers to compile this guide, which was released in 2021. The publication outlines assessment and treatment and specifically addresses ways to meet the challenge of a high-grade neuroendocrine cancer diagnosis.
Conversations: An Online Gathering for Adolescents and Young Adults (AYAs)
Healing NET has a safe space for you to talk with other people your age facing neuroendocrine cancer. Register to join this program for people 13 to 30+ with individual breakout rooms by age and for family members (parents, siblings).
Education for Healthcare Providers
Detecting Neuroendocrine Cancer: A Summary for Healthcare Providers
The typical syndromes caused by overproduction of hormones in about a third of NET cases can provide primary care doctors and other front line physicians with important clues to help distinguish neuroendocrine cancer from more common illnesses. Download the guide.
Virtual Neuroendocrine Cancer Tumor Board
Healing NET provides an online forum for healthcare professionals treating patients with neuroendocrine cancer. The format is an hour-long meeting for two to three case presentations to an experienced multidisciplinary tumor board. Sign up to submit cases and to be notified of meetings.
Other Provider Resources and Education
Healing NET has valued education of healthcare professionals from the beginning. We continue to develop new programming in collaboration with partners and NET experts. Find links to provider resources and education.
Awareness & Support via Website & Newsletter
The Healing NET Foundation maintains this website with information about neuroendocrine cancer care and sends out a monthly newsletter. Read TEN FACTS ON NET to understand why raising awareness of this disease is crucial. The website includes spotlights on patient and caregiver experiences—see ZEBRA STORIES in the navigation bar.
International Healing NET Summit
The Summit is a meeting of the Healing NET Scientific Advisory Committee and other invited guests from North America and Europe (click for a list of those who have attended). We gather these thought leaders to identify current gaps in care and to envision the future of patient care. This think tank has helped form a collaborative network of engaged professionals. Read more.
“Collaboration is the foundation of Healing NET programs. Bringing together diverse perspectives, such as those found on our Board or at the Summit, helps us identify unmet needs in the NET community and design resources and programs to fill those gaps. ”
