NET Support Groups
/Patient support groups, in person or online, are an excellent resource, especially for those newly diagnosed. It can be very powerful meeting others with your disease and learning about their experiences and where they seek their care. However, newly diagnosed people must be cautious because what works for one patient may not work for another. This is a complicated disease and some information will not relate to your situation. Sometimes information shared by another patient is just medically incorrect, especially online, where in most cases, there is no one to monitor or correct what is said. Additionally, while there may be commonalities of experiences or disease sites, one patient’s cancer can behave or respond very differently from another’s. The same goes for tolerating treatments and medications. Anything you consider for your medical care should be thoroughly discussed with your trusted medical team.
